HIV Positive Women of Color in Urban Areas of South Carolina Who Are Not in Care Público
Payton-Harmon, Angel (2016)
Published
Abstract
Women of color living continue to be greatly impacted with HIV/AIDS compared to their white counterparts. HIV/AIDS is the 4th leading cause of death among African American women ages 35 to 44 years old. According to the treatment cascade, many people living with HIV/AIDS are aware of their status but are not actively engaged in HIV care. The state of South Carolina ranks 10th in the number of HIV/AIDS cases in the United States. According to the state’s Division of Surveillance and Technical Support, there were just over 3800 African-American women living with HIV/AIDS at the end of 2014. The rates of HIV/AIDS among women of color are far greater than those of their white counterparts (742). The state’s Epidemiological Profile also surprisingly shows there are more people not in care who reside in urban areas of South Carolina than those living in rural areas. The study explored social determinants impacting the decision of urban women of color living with HIV/AIDS to not seek HIV medical care. The study participants were engaged in an in-depth interview to discuss their perceived stigma in healthcare settings, the impact of a lack of social and family support as well as depression.
Table of Contents
CHAPTER I. INTRODUCTION 1
Purpose Statement 3
Research Questions 3
Significance Statement 4
Definition of Terms 5
CHAPTER II. REVIEW OF LITERATURE 6
Women of Color Living with HIV Who Are Not In Care 6
Factors Impacting Engagement in HIV Care for Women of Color 8
Clinic Environment 10
Knowledge and Literacy 11
HIV-related Stigma 12
Medical Mistrust 13
Family and Social Support 15
Depression 18
Religion and Spirituality 20
Summary 23
CHAPTER III. METHODOLOGY 24
Population and Sample 24
Recruitment 25
Instruments 25
Procedures 26
Data Analysis Methodology 27
CHAPTER IV. RESULTS 29
Key Findings 29
Demographics and Clinical Characteristics of Participants 29
HIV Knowledge 33
Depression 33
In-depth Interviews 35
Patient/Provider Relationship 35
Conspiracy 36 HIV-related Stigma 37
Family and Social Support 38
Religion and Spirituality 38
Inductive Findings 39
CHAPTER V. CONCLUSION 40
Discussion 40
HIV-related Stigma 40
Family and Social Support 41
Depression 42
Limitations 43
Recommendations and Public Health Implications 44
Conclusion 45
REFERENCES 47
APPENDICES 63
HIV Knowledge Questionnaire 63
CES-D Scale 65
In-depth Interview Question Guide 68
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