Academic Outcomes in Children with Orofacial Clefts 公开

Knight, Jessica Holley (2012)

Permanent URL: https://etd.library.emory.edu/concern/etds/9k41zf17q?locale=zh
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Abstract


Background: Previous research has measured differences in IQ or standardized test scores between
children with and without orofacial clefts (OFC), but little is known about other academic outcomes in
this population. This study examines parent-reported letter grades, grade retention, and school days
missed among school-aged children with and without OFC, using a statewide, population-based sample.
Methods: In 2007-2008, questionnaires were mailed to a random sample of 504 mothers of children with
OFC born 1996-2002 (ages 5-12) identified by the NC birth defects registry (case mothers). A random
sample of 504 mothers of children without birth defects born 1996-2002 was selected from NC birth
certificates (control mothers). The questionnaire included Likert-scale, closed-, and open-ended questions
from validated quality of life instruments. Domains included demographics, outcomes, and quality of
life. Univariate and bivariate analysis and multivariable logistic regression were used to compare mother
reported educational outcomes between children with and without OFC. Among children with OFC,
outcomes were compared by cleft type and between children with isolated and non-isolated OFC.
Univariate and bivariate analysis also evaluated the maternal-report of selected medical conditions related
to academic outcomes.
Results: About thirty percent (N=150) of eligible case mothers and 27.6% (N=139) of eligible control
mothers responded. Case mothers reported more developmental delay/ physical impairment, speech
impairment, hearing problems and behavioral/ conduct problems among their children than control
mothers. No significant differences were found with letter grades and grade retention among children
with and without OFC or by cleft type among children with OFC. Children with OFC missed significantly
more school days than unaffected children. Children with non-isolated OFC were significantly more
likely to repeat a grade than those with isolated OFC.
Conclusions: Despite more mothers reporting behavioral and developmental problems in children with
isolated OFC, these children appear to perform similarly in school to their peers who do not have birth
defects. However, children with non-isolated OFC may benefit from additional interventions to avoid
repeating a grade in school. Further studies should investigate the specific impacts of the presence of
these co-morbidities on children with OFC in relation to their services needs and academic success.

Table of Contents

Table of Contents

I. Introduction...................................................................1
II. Background/ Literature Review...........................................................2
III. Methods....................................................................19
IV. Results.....................................................................26
V. Discussion...................................................................34
a. Limitations...................................................................37
b. Strengths...................................................................41
VI. Conclusion...................................................................43
a. Future Directions................................................................43
b. Public Health Implications..............................................................44
VII. References..............................................................46
VIII. Tables..............................................................54
a. Table 1.Maternal and child Characteristics and Academic Outcome Variables and
their Data Source of Origin................................................................54
b. Table 2a. Selected Maternal and Child Characteristics Compared Between
Children with Orofacial Clefts (OFC) (cases) and Children Without a Major Birth
Defect (controls)....................................................................55
c. Table 2b. Computed SES Levels Compared Between Children with OFC
(Controls) and Unaffected Children (Cases)............................................................57
d. Table 3a. Bivariate analysis of the three academic outcomes between all children
with OFC and unaffected children and children with isolated OFC and unaffected
children.........................................................................58
e. Table 3b. Bivariate analysis of the three academic outcomes between all children
with isolated OFC and non-isolated OFC and among children with the three cleft
types (cleft lip only, cleft lip and palate, and cleft palate only)............................................................59
f. Table 4a. Bivariate analysis of the selected medical conditions between all
children with orofacial clefts (OFC) and unaffected children (controls) and
children with isolated OFC and unaffected children..............................................................60

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