Recommendations For Data Exchange Standards Updates And Registry Implementation Open Access

Moore, Natasha (Fall 2017)

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This thesis documents recommendations for data exchange standards that is important in public health today.  The reasons for this are numerous and complex, however, inadequate data to support public health and healthcare entities has been identified as an area which is essential to making both healthcare and public health efforts more effective.   Specially, lack of data collection from electronic health records (EHR) and; electronic laboratory reports (ELR) has been identified as a key challenge.   


Georgia Department of Public Health identifies inadequate data collection as a reason for limited funding.  Technology can help change this trend by collecting required data attributes.  Bridging data gaps will ensure generation of electronic case reporting (eCR) form the electronic health records encounter form which is transmitted online through State Electronic Notifiable Disease Surveillance System (SENDSS).   


Additionally, recommendations to implement a Chronic Kidney Disease registry to determine incidence of increased deaths. 


In the United States, the Centers for Disease Control and Prevention (CDC) estimate adults diagnosed with diabetes might be predisposed to CKD.  As individuals age, kidney disease worsens even though medical intervention and treatment is administered.  Over time, individuals may need a kidney transplant and dialysis while waiting for a donor.  There is a need to build a national cloud based commercial compliant kidney registry. 




Table of Contents




chapter 1: Introduction.. 2

1.1            introduction data exchange & Registry implementation. 2

chapter 2: data exchange.. 3

2.1            data exchange background. 3

2.2            data exchange table 1 high level requirements. 4

2.3            data exchange table 2 major deliverables. 4

2.4            data exchange problem statement 5

2.5            data exchange timeline, resources & Quality. 6

2.6            data exchange figure 1 timeline. 6

2.7            data exchange information flow.. 7

figure 2 information flow diagram.. 8

2.8            data exchange implementation plan. 11

2.9            data exchange table 3 implementation plan. 11

2.10          data exchange objectives. 12

chapter 3: registry implementation.. 14

3.1            registry implementation background. 14

3.2            registry implementation problem statement 15

3.3            registry implementation table 4 primary data elements. 16

3.4            registry implementation data storage. 17

3.5            registry implementation concepts of visualization / Reporting. 17

3.6            registry implementation key stakeholders. 18

3.7            registry implementation information flow diagram.. 19

3.8            registry implementation project plan. 19

3.9            registry implementation purpose & objectives. 20

3.10          registry implementation & mitigating risks. 22

3.11          registry implementation schema & database design. 23

chapter 4: conclusion.. 24

4.1            data exchange & Registry implementation conclusion. 24

Appendix A.. 26




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