Monitoring and Evaluation of a New Program to Modernize U.S. Public Health Surveillance through Data-entry Once and Creation of a One Health, Integrated Disease Surveillance and Response Health Information System Public
Nguyen, Liah (Spring 2023)
Abstract
The healthcare industry has relied on data-driven medical records, but many doctors still use pen and paper or store data in inaccessible external drives. Patients with severe disorders visit different clinicians without a uniform medical record system. While the electronic medical record (EMR) system has been introduced to address this issue, there are multiple EMRs with different designs and coding languages. The COVID-19 pandemic exposed shortcomings in the public health infrastructure, with delays and inaccuracies in data collection and analysis, and limitations in monitoring and evaluation frameworks. To address this, a team proposes the One Health Integrated Disease Surveillance and Response (IDSR) Health Information System (HIS) that enables healthcare providers to enter data only once. This feeds into the EMRs and the new HIS, with reportable public health data from other sources. The system aims to modernize public health surveillance (PHS) using AI and ML to predict and prevent diseases and standardize assessments. The purpose of this special studies thesis is to develop a monitoring and evaluation (M&E) plan for the One Health IDSR HIS pilot, including data collection plans and tools, to enable scientific evaluation and achieve program success. The investment in the IDSR system has the potential to be a long-lasting investment in US public health, saving lives by improving prevention, detection, and response to leading causes of illness, death, and disability.
Table of Contents
Chapter 1: Introduction and Background 1
1.1 Introduction and Rationale 1
1.2 Problem Statement 2
1.3 Purpose 2
1.4 Objectives 3
1.5 Significance 3
Chapter 2: Literature Review 5
2.1 Electronic Medical Record (EMR) Systems 5
2.2 Integrated Disease Surveillance and Response (IDSR) 7
2.3 CDC Data Modernization Initiative and the North Star Architecture 9
Chapter 3: Monitor and Evaluation Plan 12
3.1 Program Overview 12
3.2 Indicators 17
3.3 Outcomes 19
3.4 Pilot Program 19
Chapter 4: Discussion 20
4.1 Strengths 20
4.2 Limitations 21
4.3 Recommendations 21
4.4 Implications 23
4.5 Conclusions 24
References 26
About this Master's Thesis
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