DEVELOPING A PROCESS FRAMEWORK TO CREATE REPORTING CRITERIA FOR CONDITIONS EXTENDING BEYOND THE 2015 NATIONALLY NOTIFIABLE CONDITIONS LIST Open Access

Lipstein, Julie (2016)

Permanent URL: https://etd.library.emory.edu/concern/etds/qr46r167v?locale=en
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Abstract

The reporting of disease cases is the foundation of public health surveillance. In order to better facilitate public health surveillance for conditions of interest to Public Health, the Council of State and Territorial Epidemiologists (CSTE) is responsible for the creation and implementation of position statements. These documents provide standard agreed-upon criteria for case classification and case reporting to help epidemiologists conduct disease investigations. The Reportable Conditions Knowledge Management System (RCKMS) project previously established a process for developing reporting criteria of reportable conditions that have a corresponding CSTE position statement; however, no such process exists for conditions that do not have a CSTE position statement. This study will develop a process framework to be used by the RCKMS team to develop reporting specifications for conditions that are reportable to local or state public health, but are not nationally notifiable.

Methods: This thesis work reviewed data from a 2012 State Reportable Condition Assessment (SRCA) and the current Reportable Conditions Mapping Table (RCMT) to identify reportable conditions that are not nationally notifiable. Each condition was analyzed based on the following criteria: availability of a CSTE position statement, availability of other related CSTE position statement, exists in RCMT, and whether or not the condition has laboratory criteria.

Results: Total of 190 conditions were analyzed and divided into 7 groups based off the criteria outlined above. These groups were then prioritized for development of reporting criteria to be pre-populated in the RCKMS tool. Within each group, the conditions were further prioritized based on the number of jurisdictions requiring the condition to be reported. A process framework was developed that recommended prioritization of the condition groups, and methods for deriving reporting criteria for each group.

Table of Contents

Table of Contents
CHAPTER 1: INTRODUCTION................................................................................................................................... 1
Introduction and rationale................................................................................................................................... 1
Problem statement............................................................................................................................................. 3
Purpose statement............................................................................................................................................. 4
Research question.............................................................................................................................................. 4
Significance statement........................................................................................................................................ 5
Definition of Terms............................................................................................................................................. 5
CHAPTER 2: REVIEW OF LITERATURE .......................................................................................................................15
Introduction...................................................................................................................................................... 15
Review of literature............................................................................................................................................ 15
Established eCR projects - experiences defining reporting specifications................................................................ 15
Existing sources - Identifying and categorizing conditions.................................................................................... 19
Conditions with CSTE position statements - Process to define reporting criteria...................................................... 24
Summary of current problem and study relevance.................................................................................................. 29
CHAPTER 3: METHODS........................................................................................................................................... 31
Introduction...................................................................................................................................................... 31
Population and sample........................................................................................................................................ 31
Research Design................................................................................................................................................ 32
Procedures........................................................................................................................................................ 32
Instruments...................................................................................................................................................... 36
Data analysis methodology.................................................................................................................................. 36
CHAPTER 4: RESULTS............................................................................................................................................. 37
Introduction....................................................................................................................................................... 37
Key findings....................................................................................................................................................... 37
Previous projects............................................................................................................................................ 37
Condition analysis........................................................................................................................................... 39
Recommended process.................................................................................................................................... 41
Pilot condition................................................................................................................................................ 54
Other findings.................................................................................................................................................... 62
Summary.......................................................................................................................................................... 63
CHAPTER 5: CONCLUSIONS..................................................................................................................................... 64
Introduction....................................................................................................................................................... 64
Summary of study.............................................................................................................................................. 64
Limitations........................................................................................................................................................ 65
Implications....................................................................................................................................................... 66
Recommendations.............................................................................................................................................. 67
Conclusion........................................................................................................................................................ 68
References............................................................................................................................................................ 70
Appendix A: RCKMS Project Documents..................................................................................................................... 74
Appendix A1 Process Criterion Valueset Rule STANDARDIZED (MS Word)....................................................................... 74
Appendix A2: Process Condition Template (MS Excel).................................................................................................. 118
Appendix B: SRCA Conditions by Number of Jurisdictions Where Reportable................................................................... 120

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