ii Barriers to testing and treatment for Chagas disease among Latino immigrants in Georgia Pubblico
Minneman, Rebecca Marie (2012)
Abstract
iv
Abstract
Barriers to testing and treatment for Chagas disease among Latino
immigrants in Georgia
Background: Chagas is a parasitic disease primarily
affecting Latin Americans, which is
increasing in the US due to the recent growth of the Latino
immigrant population. The lack of
testing and treatment of Chagas disease in the US increases the
risk of serious health
complications among infected immigrants and poses a risk of
transmission from mother to child
or via blood transfusions.
Goal: The goal of this study is to identify the barriers to
testing and treatment of Chagas disease
amongst Latino Immigrants in Georgia and to understand the process
of seeking healthcare
interventions.
Methods: In this qualitative study, nine focus group
discussions were conducted with male and
female Latino immigrants to understand their perceptions of Chagas
disease and their process of
seeking healthcare if they had Chagas symptoms. Grounded theory was
used to collect and
analyze the textual data to develop an inductive conceptual
framework to explain the context and
process of seeking healthcare for Chagas amongst this at risk
population.
Results: Participants were not aware of Chagas disease. When
asked how they would seek care
for symptoms of Chagas disease, three distinct behaviors were
identified: delaying treatment,
using traditional remedies, and using either mainstream or
alternative health providers. Health
seeking behaviors and motivations differed for women and men, but
the use of licensed medical
providers was seen as a last resort due to the cost of healthcare,
loss of earnings while seeking
care and fear of diagnosis with fatal illness.
Discussion: The lack of awareness of Chagas disease amongst
Latino immigrants in the US
suggests a strong need for targeted education about the disease.
Providing free or low cost
services, mobile treatment clinics and education regarding Chagas
disease is critical to increase
testing and treatment for Chagas disease.
Table of Contents
viii
Table of Contents
Contents
Acknowledgements
..........................................................................................................................
iv
Abstract
...........................................................................................................................................
vi
Table of Contents
...........................................................................................................................
vii
List of Figures
..................................................................................................................................
iix
Role in
Thesis/Manuscript
................................................................................................................
ix
Review of the Literature
...................................................................................................................
1
Manuscript
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26
Introduction
.....................................................................................................................................
27
Methodology
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32
Results
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40
Discussion
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56
Public Health
Implications
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68
Appendix A: Focus Group
Discussion Guide (Spanish)
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70
Appendix B: Focus Group
Discussion Guide (English)
.................................................................
73
Appendix C: Emory
Internal Review Board
Approval...................................................................
76
About this Master's Thesis
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