Cultural Perceptions and Realities of Autism: Family Narratives and Systemic Challenges in the Hispanic Community Public
Andrade, Helen (Spring 2025)
Abstract
This thesis explores the cultural perceptions and systemic challenges Hispanic families face in the diagnosis and treatment of autism spectrum disorder (ASD). Through semi-structured interviews with Hispanic individuals who have a family member with ASD, this study uses a qualitative approach to investigate lived experiences before and after diagnosis. Five core themes emerged: limited awareness and stigma, barriers within the healthcare system, struggles in the education system, gender roles in ASD caregiving, and fear for the future and long-term independence. Many participants reported not knowing what autism was prior to diagnosis and described how cultural beliefs, denial, and lack of community understanding impacted early recognition. Others described how language barriers and culturally incompetent healthcare providers led to delays in diagnosis or inappropriate care. Post-diagnosis, families often faced challenges navigating educational systems and voiced deep concerns about their child’s long-term future. This research contributes to a growing body of literature calling for more inclusive, culturally competent healthcare and educational systems.
Table of Contents
Introduction
Literature Review
Methods
Results/Analysis
Discussion
Limitations
Conclusion
Appendix
Bibliography
About this Honors Thesis
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