Trust in Genomic Research: Attitudes and Perspectives that May Shape College Student Participation in Biobanking/Biorepository Genomic Research Open Access

Abstract

Genomic research holds many potential benefits for advancing clinical care, improving disease detection, and more. However, a significant underrepresentation of minority populations in genomic studies has resulted in limited applicability of genomic research findings. This underrepresentation stems from a variety of factors, including systemic racism, historical abuses, and a lack of knowledge/understanding about the benefits of genomic research, each contributing to skepticism and mistrust among minoritized communities. This study explores the role of trust in shaping college students’ motivations and attitudes on participating in genomic research, with a large focus on historically underrepresented demographic populations. Through a hybrid deductive and inductive qualitative analysis of focus group interviews, this research found several key themes relating to trust that were discussed in interviews.

Table of Contents

Section I: Introduction

Ethical Dilemma in Genomic Research

Evidence of Racism in Science

Scientific Advancements/Efforts to Address Diversity Issue

Protecting and Shaping Public Perception of Human Subjects Research: The Role of Trust

Research Goals

Section II: Method

Participants

Analytic Procedure

Section III: Results

Research Goal I: Comparing and Contrasting Existing A Priori and Emergent Themes Relating to Trust

Research Goal II: Conceptualizing Trust-Related Themes in Focus Group Interviews

Research Goal III: Inferring How Trust-Related Themes May Influence Motives to Participate in Genomic Research

Section IV: Discussion

Limitations

Summary and Conclusions

Future Directions

References

About this Honors Thesis

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School	Emory College
Department	Anthropology
Degree	B.S.
Submission	Honors Thesis
Language	English
Research Field	Anthropology, Medical and Forensic Anthropology, Cultural
Keyword	Biorepository Genomic Biobank Trust
Committee Chair / Thesis Advisor	Rohan Palmer, Emory University
Committee Members	Arri Eisen, Emory University Craig Hadley, Emory University

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