Applying the Collaborative Approach to Requirements Gathering in the Development of a Buruli Ulcer Database in Ghana Público

Honu, Marian Enyonam Afi (2012)

Permanent URL: https://etd.library.emory.edu/concern/etds/5425kb66f?locale=es
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Abstract

One of the conclusions made at the 2011 WHO Annual Buruli Ulcer Meeting, Geneva
Switzerland was the requirement to strengthen surveillance. The call was made for the
development of an accurate and robust database which would serve as a repository for Buruli
Ulcer (BU) surveillance data. This would provide a reliable and accurate source of information
for various stakeholders and also foster more collaborative work between countries which are
endemic with BU by facilitating easier transfer of information and sharing of ideas.
Stakeholders of BU have varied goals and objectives and perform different tasks within
countries and across the globe. However, they are united by a collective vision of controlling
the disease. By applying the concept of Collaborative Requirements Development to the design
of a BU database, it ensures the database developed does not become a silo. With emphasis on
interoperability and collaboration, this concept highlights the involvement of all stakeholders in
the development of a database by incorporating their goals, objectives and needs in the design
of the database. Involvement of stakeholders at the onset and throughout development leads
to a stronger willingness by stakeholders to support and contribute to it.
An electronic BU database is envisioned that meets the standards of the World Health
Organization (WHO). This database would be scalable to other countries reporting Buruli Ulcer
cases. It would ultimately serve as a repository for data collection on various activities related
to the disease across the globe.
Various stakeholders identified in Ghana included WHO, local and international researchers,
non-governmental organizations, Ministry of Health, Ghana Health Service, various health
facilities and Community Based Surveillance Volunteers (CBSV's). Key personnel from the
various organizations were identified and invited to join focus group discussions or individual
interviews. Study staff also observed collection of surveillance data from points of origin in the
Ashanti and Greater Accra Regions of Ghana through each level of care as well as transmission
of data from the local, regional, and national levels. This provided insights into how data on
cases are managed and processed. Information obtained was summarized and
recommendations made based on the summary of findings.

Table of Contents


TABLE OF CONTENTS
CHAPTER 1 - INTRODUCTION 1

1.1 BACKGROUND 1
1.2 PROBLEM STATEMENT 2
1.3 PURPOSE STATEMENT 2
1.4 SIGNIFICANCE STATEMENT 3
1.5 GLOSSARY 5
CHAPTER 2 - REVIEW OF LITERATURE 6
2.1 DISEASE BACKGROUND 6
2.2 COLLABORATIVE APPROACH 7
2.3 COUNTRY BACKGROUND 9
CHAPTER 3 - METHODOLOGY 12
3.1 GEOGRAPHIC SCOPE 12
3.2 STAKEHOLDER SELECTION 12
3.3 INFORMATION GATHERING 13
3.3 INCLUSION AND EXCLUSION CRITERIA 14
3.3 LIMITATIONS AND ASSUMPTIONS 14
CHAPTER 4 - RESULTS 15
4.1 GENERAL OVERVIEW 15
4.2 COMPARISON TO EMORY REPORTS 19
4.3 BURULI ULCER SURVEILLNACE IN AGOGO SUB-DISTRICT 20
4.4 BURULI ULCER SURVEILLNACE IN GA WEST DISTRICT 32
4.5 RESULTS FOR STAKEHOLDER INTERACTIONS USING THE COLLABORATIVE APPROACH 38
CHAPTER 5 - CONCLUSION AND RECOMMENDATIONS 55
5.1 GENERAL SUMMARY 55
5.2 RECOMMENDATION 55
5.3 REFERENCES 59
5.4 APPENDICES 61

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