Parenting stress and child psychosocial functioning over the first year of inflammatory bowel disease diagnosis Open Access

Reed, Eva Bonney (Spring 2022)

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A diagnosis of inflammatory bowel disease (IBD) in children can disrupt the family system, including altered routines and increased medical responsibilities. This may increase parenting stress; however, little is known about how parenting stress changes over the first year following an IBD diagnosis, as well as what demographic, disease, or psychosocial factors may be associated with parenting stress over time. Fifty-three parents of children newly diagnosed with IBD (Mage=14.17 years; Mdays since diagnosis=26.15) completed questionnaires assessing parenting stress frequency and difficulty (Pediatric Inventory for Parents), child anxiety (Screen for Child Anxiety Related Disorders), and child health-related quality of life (HRQOL; IMPACT) within 1-month of diagnosis and at six-month and one-year follow-up. Multilevel longitudinal models assessed change and predictors of parenting stress. Parenting stress at diagnosis was associated with greater child anxiety and lower HRQOL, while caregivers of color and caregivers of female youth reported higher parenting stress (ps<.05). Significant variability and declines in parenting stress over one year were observed. In final models, caregiver race/ethnicity and child HRQOL were significantly related to parenting stress frequency and difficulty over the first year of diagnosis. Parenting stress decreases for caregivers across one year of diagnosis. However, caregivers of color and those who rate their child’s HRQOL as lower may be at risk for greater parenting stress. More research is needed to understand why caregivers of color reported greater parenting stress compared to White caregivers. Results highlight the importance of providing whole-family care when a child is diagnosed with IBD.

Table of Contents

Introduction 1

Methods 5

Results 10

Discussion 14

References 19

Table 1 Demographics Table 24

Table 2 Linear Mixed Model with Time as Main Effect 25

Table 3 Linear Mixed Model with Time and Predictors 26

Table 4 Demographics by Parenting Stress at Diagnosis 27

Table 5 Correlations Between Study Variables 28

Table 6 Comparisons Between Completers and Those Missing Data 29

Figure 1 Data Trajectories for Parenting Stress 30

Figure 2 Mean levels of Parenting Stress by Caregiver Race 31

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