Integration of Community Health Workers into Hypertension Management and Medication Adherence Open Access

Allen, Caitlin Gloeckner (2015)

Permanent URL: https://etd.library.emory.edu/concern/etds/c534fn97v?locale=en%255D
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Abstract

Background: Rates of hypertension control remain particularly low among underserved populations; consequently the disparities in cardiovascular disease mortality in underrepresented groups are increasing. While evidence exists to support community health workers (CHWs) as effective interventionists for hypertension self-management among underserved groups, the level of integration and coordination with health teams is unknown. This study aims to understand the roles CHWs have in hypertension self-management, ways that CHWs promote and support medication adherence, and factors that support CHWs in their roles.

Methods: CHWs were recruited through an American Public Health Association sponsored listserv of 30 CHW networks and associations from 19 states. The first phase of the study included an online survey open for eight weeks. The survey included items about CHWs work in hypertension self-management and integration into health are teams. We also conducted 23 semi-structured interviews with CHWs from 17 states and the District of Columbia. Quantitative data were imported from Survey Monkey into SPSS Statistics version 22 and analysis included descriptive statistics and bivariate statistics. Interviews were compiled into MAXQDA version 11 and analyzed by two coders using inductive thematic analysis.

Results: Findings revealed that CHWs' roles in hypertension self-management include: education (84%), removing knowledge barriers about medicines (74%), increasing access to providers (73%), and improving patient-provider relationships (70%). Over half of CHWs considered themselves an important part of the care team for patients with hypertension and 75% reported feeling well supported in their work. CHWs feel most supported when they have strong relationships with their team, are well trained, and make connections with CHWs outside of their organization.

Conclusions: By understanding CHWs' roles in hypertension self-management, healthcare professionals can better prepare to integrate CHWs into healthcare teams. This research is unique because of its focus on gaining CHWs' perspective about their work. Results from this study will help healthcare professionals, policy makers, and academics better understand CHWs and how they can best be integrated into care teams to address barriers for patients prevent and manage hypertension.

Table of Contents

Chapter 1. Introduction and Theoretical Framework 1

Problem Definition 1 Study Purpose and Justification 2

Theoretical Framework 2

The Medication Adherence Model 2

Consolidated Framework for Implementation Research 3

Research Questions 3

Chapter 2. Literature Review 5

The Burden of Hypertension in the United States 5

Hypertension Self-Management and the Chronic Care Model 6

Hypertension Medication Management 8

Hypertension Management Strategies and Research 10

Community Health Workers 11

Hypertension Self-Management and Community Health Workers 13

Community Health Workers and Hypertension Medication Management 17

The Multidimensional Adherence Model and Community Health Workers Roles 19

Community Health Workers as Part of the Care Team for Patients with Hypertension 22

Combined Multidimensional Adherence Model and Consolidated Framework for Implementation Research 24

Chapter 3. Methods 26

Participants 26

Measures 27

Procedures 28

Institutional Review Board Approval 30

Study Consenting 31

Data Collection and Management 31

Analysis 32

Quantitative Data Analysis 32

Qualitative Data Analysis 32

Chapter 4. Results 34

Descriptive Statistics 34

Research Question 1: What are CHWs' roles in hypertension self-management? 40

Who CHWs Work With 41

Service Delivery 42

CHW Roles in Hypertension Self-Management 45

CHWs as Partners in Hypertension Self-Management 60

Getting to the Root of the Problem: CHWs Addressing More than Hypertension 60

Research Question 2: What are ways CHWs promote and support hypertension medication adherence according to the five dimensions of adherence? 63

Patient-Related Barriers and Roles 64

Condition-Related Barriers and Roles 68

Therapy-Related Barriers and Roles 71

Health System Barriers and Roles 77

Social and Economic Barriers and Roles 81

Success Stories 85

Research Question 3: How are CHWs integrated into their healthcare organization? 87

Organizational Support 87

Organizational Support Scale 98

Characteristics of Successful CHW Organizations 99

Research Question 4: What organizational factors support CHWs in their roles in hypertension self-management and hypertension medication adherence? 105

Attending Staff Meetings 105

Being Part of a Multidisciplinary Care Team 108

Other Staff 110

Support from Leadership or Program Champion 110

Lack of Support 111

Electronic Health Record Access 112

Support and Validation from Patients 114

Training as Support for CHWs 116

Non-organizational Factors that Support Work as CHWs 122

Summary of Inner Setting and Outer Setting CFIR Constructs 130

Other Findings 133

CHWs and the Chronic Care Model 135

Chapter 5. Discussion 138

Key Findings 138

Descriptive Information about Sample 138

What are CHWs' roles in hypertension self-management? 138

What are ways CHWs promote and support hypertension medication adherence according to the five dimensions of adherence? 139

How are CHWs integrated into their healthcare organization? 141

What organizational factors support CHWs in their roles in hypertension self-management and hypertension medication adherence? 141

CHWs and the Chronic Care Model 144

Strengths and Limitations 144

Strengths 144

Limitations 145

Implications and Recommendations for Further Study 146

Descriptive Information about Sample 153

What are CHWs' roles in hypertension self-management? 155

What are ways CHWs promote and support hypertension medication adherence according to the five dimensions of adherence? 158

How are CHWs integrated into their healthcare organization? 163

What other organizational factors support CHWs in their roles in hypertension self-management and hypertension medication adherence? 165

Other Findings and New Models 170

Beyond Models: Monitoring and Evaluation 177

Conclusion 179

References 181

Appendix A. CFIR Construct with Short Definitions 194

Appendix B. Quantitative Survey Guide 196

Appendix C. Interview Guide 209

Appendix D. Qualitative Codebook 213

Appendix E. Medication Adherence Model Quotes 217

Appendix F. Organizational Support Quotes 236

Appendix G. Outer Setting Support Quotes 254

Appendix H. Training Quotes 274

Appendix I. Additional Quotes 287

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