Cloud Computing Solutions for Newborn Screen Data Disruption by Hurricane Disasters Open Access

Gordon, Linda (Spring 2019)

Permanent URL: https://etd.library.emory.edu/concern/etds/12579t33q?locale=en%255D
Published

Abstract

 

Cloud Computing Solutions for Newborn Screen Data Disruption by 

Hurricane Disasters

                                                            

                                                            By

 

Linda Gordon, MD

 

 

 

.

Purpose Statement:

The purpose of this thesis is to provide a systematic literature review of Newborn Screen system components, the newborn screen information flows and disaster planning considerations, which result in operational improvements during hurricanes. This thesis reviews the 2005 Hurricane Katrina as a pivotal weather event where health information was significantly disrupted.

Methods: This thesis followed a systematic literature review presenting analysis from those articles and data gathered to address the questions of how best to improve health information flows for the Newborn Screen, during disaster planning and utilizing modern technology available that being cloud computing. periodical literature, government documents and grey literature were contrasted and compared for content and bias.

Results:

The selected literature for review gave important insight as to the evaluation of health information for the Newborn Screen in times of disaster and emerging technologies so as to improve resulting health outcomes. The literature highlighted the importance of collaboration among health professionals, federal agencies, and public private partnerships. The adjunct use of the emerging technology of virtual cloud computing was also deemed an effective use of a health IT systems that would ensure effective delivery of Newborn Screen services in times of disaster.

Conclusion:

Virtual cloud computing is the modern technology solution to delivery of uninterrupted Newborn Screen services during hurricanes. This may be achieved via amplification of existing cloud structures in at risk regions through public private partnerships. Moreover, lessons learned from Japan, Australia and France indicate that virtual computing can be applied to the health care infrastructure for disaster planning or national health care the potential for greatly improved health outcomes.

 

 

 

 

 

Table of Contents

                               Table of Contents

CHAPTER 1 INTRODUCTION

PROBLEM IDENTIFICATION

Purpose Statement

Rationale

Problem Statement

Research Question

Significance Statement

Thesis Organization

Definition of Terms and Abbreviations

CHAPTER 2 LITERATURE REVIEW

INTRODUCTION

Purpose Statement

Problem Statement

Research Questions

REVIEW OF LITERATURE

Hurricane Trends and Significance

Review of Hurricane Katrina, Events and Lessons Learned

Hurricane Sandy and Improvements in Information’s Delivery for Newborn Screen

The History of the Newborn Screen

Newborn Screen Health Information Flow

Evolution of Disaster Planning, Concepts and Organization

Foundational Concepts of Disaster Preparedness

Information Exchange in Emergency Management and the Evolution of Cloud Computing

Emergency Preparedness, Health IT and CONPLAN, COOP

Characteristics of Cloud Computing:

SUMMARY

CHAPTER 3 METHODS

INTRODUCTION

Purpose Statement

Problem Statement

LITERATURE SEARCH METHODOLOGY

Data Type: Systematic Literature Review, Methodology

Project Design and Procedures

DATA SELECTION

BiSLR Method and PRISMA Results

PRISMA Table Analysis and Discussion

SUMMARY OF DATA AND METHODS

CHAPTER 4 RESULTS

INTRODUCTION

Purpose Statement

Problem Statement

Hurricanes and Disaster Planning for the Newborn Screen

Federal Interagency Disaster Operations Plan

Newborn Screen Information Exchange in the SouthEast Regional Collaborative:

Hospital Information Exchange and Disaster Planning

CHAPTER 5 DISCUSSION

INTRODUCTION

SUMMARY OF KEY FINDINGS

Health Information Exchange as Cloud Services

Cloud Attributes

Cloud Computing Definitions and Requirements:

Security for the Cloud:

Practical Application/Anecdotal Evidence

IMPLICATIONS

RECOMMENDATIONS AND NEXT STEPS:

NOTE BENE

REFERENCES

TABLES AND FIGURES

Figure 1. Newborn Screen Contingency Plan

Figure 2. Hurricane Categories

Figure 3. Hurricane Trends

Figure 4. Newborn Screen Data Flow

Figure 5. Genetics Collaborative Regions

Figure 6. CONPLAN Stakeholders

Figure 7. SLR Inclusion/Exclusion Criteria

Figure 8. Prisama Diagram

Figure 9. Hospital IT Recovery Plan

Figure 10. Cloud Schema for Hurricane Katrina

Table 1. , 2.  COOP Stake Holders

Table 3. PRISMA Table Results

Table 4. Federal Interagency Disaster Operations Plan

Table 5. South East Regional Collaborative, HIE of NWHIN

Table 6. South East Regional Collaborative Business Process Matrix

Table 7. EHR vx. Cloud Attributes

 

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